One Day

One day I swear I'm going to return every one's calls. One of my BFF's told me to just write for now. I honestly wish I could talk and some days it's easier than others but it's hard. I think I put up a good front. Not all of it is a front though, there's definitely some strength there but at times I'm really weak. Last night I came across a picture of Nathan, we were at Preston's Hope a park here in Cleveland and in the picture Nathan is walking into a big house that's on the playground. I took the picture from behind and his little arms are open and he's in mid stride and there's this big opening and he's heading in and I don't know why but for some reason I had a vision of him walking into glory and of course the tears began to flow and now when I cry it's horrible. I cry like I never have before. I can feel it in my stomach it's so painful. I went in the bathroom so I wouldn't disturb Sam and I just cried myself sick literally. I feel as if this is a nightmare. And I've gotten so many kind words and acts of kindness thrown our way but it doesn't help. I know God can fix this. I know He can heal Nathan and I know he could do it right away. So why is He stalling? I don't know. I still trust Him. Honestly I have no where else to go but to Him and that's where I've been. Begging God to spare our child. I literally pleaded with Him not to take Nathan's life. Honestly a car accident would be better than this. I've watched Nathan suffer so much already. They have to put him to sleep everytime they do a lot of CT scans and MRI's because he's too young to understand not to move. Have you ever seen anyone put your child under? Every see your child go from screaming to crying to just floppy limp? Have you ever seen your kid have out of it calling for his Dad? Have you ever had to send your baby away over and over into the hands of strangers, knowing they're going to be probing him etc and you can't go in to protect them.

To do the CT Scan to measure for radiation they had to put Nathan asleep and bolt his head to the table...literally. They do it with a mesh facial mask that they wet in water and quickly put on your face to mold it to the shape of your face. They do this because when they get radiation, they absolutely cannot move so he'll be put under to get the radiation that will last everyday for 4 weeks starting feb. 15. We were in there when they put the first facial mask over his face and they closed his mouth and were molding the mask but he had been breathing out of his mouth instead of his nose so the Doctor in the room had to quickly have them unbolt the mask because his oxygen level went down. I was so thankful for that doctor. Have you ever had to give your child an injection? It hurts enough to watch the doctor do it but imagine giving a 3 year old a shot every single day.

Some people have suggested I talk to someone... well talk to who? Some specialist who've never experienced having a sick child? I don't think so. Maybe in the future I'll talk to someone but not now.

I want to scream over and over but I can't, it's not helping. My child has changed, he's sick and it's almost like he's sad. I just got off the phone with my husband who said that he's calling the doctor because he still feels like they're missing something. He said even if we have to bring him back today he wants him looked at. So I'm here getting our clothes ready. I hate life right now. I want to love it but I can't if our child isn't well.

I hate to sound like I'm contradicting my last post but get used to inconsistencies if you're reading this. Some days are OK and some are horrible.